In a heartfelt appeal for support, individuals living with Parkinson's disease have shed light on the challenges they face, not only battling the physical symptoms of the illness but also combating the stigma that often accompanies it. Many patients have expressed feeling marginalized and undervalued in society, citing a lack of understanding and awareness about Parkinson's as contributing factors.
Parkinson's disease, a neurodegenerative disorder that affects movement, currently affects over 10 million people worldwide, with numbers expected to rise due to ageing populations. Despite its prevalence, misconceptions and stigma surrounding the disease persist, leading to social isolation and discrimination for those living with it.
"I often feel like people don't see me anymore," shares Sarah [not her real name], a 63-year-old Parkinson's patient in Sogakope. "Once an active member of my community, I now feel invisible. There's this assumption that because I have Parkinson's, I can't contribute or participate like I used to."
The sentiment echoes among many others in the Parkinson's community, who feel their worth and abilities are undermined due to misconceptions about the disease. Parkinson's not only affects motor functions but can also lead to cognitive and emotional changes, further exacerbating the challenges faced by patients in navigating social interactions.
"I've had people treat me differently once they found out about my diagnosis," says Michael [not his real name], a 55-year-old Parkinson's patient. "It's as if they think I'm no longer capable. The stigma makes it harder to maintain relationships and stay connected with others."
The impact of stigma on Parkinson's patients extends beyond interpersonal relationships, affecting access to employment, healthcare, and community participation. Many individuals report feeling hesitant to disclose their diagnosis due to fear of discrimination or pity, leading to increased feelings of isolation and loneliness.
Experts emphasise the urgent need for greater awareness and support to address the stigma surrounding Parkinson's disease. Education campaigns, advocacy efforts, and initiatives to promote inclusivity and understanding are crucial steps toward creating a more supportive environment for patients.
"We cannot allow stigma to continue dictating the experiences of Parkinson's patients," states Dr Momodou Cham, a public health Physician specializing in movement disorders. "It is imperative that we challenge misconceptions and foster a culture of acceptance and empowerment for those living with the disease."
In response to the appeal from Parkinson's patients, the Member of Parliament for North Tongu, Samuel Okudzeto Ablakwa is calling for increased funding for research, improved access to healthcare services, and comprehensive support programmes tailored to the unique needs of individuals with Parkinson's.
"As a society, we must do better in supporting those living with Parkinson's disease," urges, Samuel Ablakwa Okudzeto. "Every individual deserves to be valued and respected, regardless of their health condition. It's time to stand together and end the stigma."
The call to action comes as Parkinson's Awareness Month draws to a close, serving as a reminder of the ongoing challenges faced by patients and the critical need for collective efforts to address stigma and ensure dignity and inclusion for all.
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